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WORKSHOP LAY REPORTS

2016
Jul 222 Myotonic Dystrophy - Developing a European Consortium for Care and Therapy
Jun 221 Foot surgery in Charcot-Marie-Tooth disease
May 220 The 2nd ENMC workshop on Dystroglycan and the Dystroglycanopathies
Apr 219 Titinopathies - International database of TTN mutations and phenotypes
Feb 218 Revisiting the consensus statement for standards of care in SMA
Jan 217 RYR-1 related myopathies
Jan 216 Clinical trial readiness for FKRP related muscular dystrophies

2015
Nov 215 VCP-related multi-system proteinopathy
Oct 214 Establishing an international consortium for gene discovery and clinical research for Congenital Muscle Diseases
Sep 213 Outcome measures and clinical trial readiness in Idiopathic Inflammatory Myopathies (IIM)"
May 212 Animal models in CMD
Apr 211 Development of diagnostic criteria and management strategies for McArdle Disease and related rare glyco(geno)lytic disorders to improve standards of care
Mar 210 Towards a European consortium for research and patient clinical management in Spinal and Bulbar Muscular Atrophy (SBMA)

2014
Nov 209 SMA outcomes and clinical trial readiness
Oct 208 Formation of a European network to develop a European data sharing model and treatment guidelines for Pompe disease
Jul 207 Chronic respiratory insufficiency in Myotonic Dystrophies: management and implications for research
May 206 Adults with DMD
Apr 205 Pathology Diagnosis of Idiopathic Inflammatory Myopathies
Feb 204 Biomarkers in DMD

2013
Dec 203 Respiratory Pathophysiology in Congenital Onset Neuromuscular Disease: Implications for Pro-active Care and Clinical Research
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