Most neuromuscular disorders are rare (orphan) diseases, meaning that fewer than 1 in 2,000 people are affected. They all cause a weakening of muscles, which could lead to tremendous disability. Because of this, international collaboration is extremely important to accelerate our knowledge and discovery of new medicines in the field of neuromuscular diseases.

Historical background

The European Neuromuscular Centre (ENMC) was founded in 1992 by a group of European patient associations that dedicated itself to bring leading researchers and clinicians from all over the world together. The ENMC is unique within the scientific world to achieve this by financing and organising workshops. Topics of the workshops vary from outcome measures, clinical trial readiness and preclinical studies, to diagnosis and care for all neuromuscular diseases for instance spinal muscular atrophy, Duchenne muscular dystrophy, limb girdle dystrophies and congenital muscular dystrophies.

ENMC Mission statement

"The mission of ENMC is to encourage and facilitate communication and collaboration in the field of neuromuscular research with the aim of improving diagnosis and prognosis, finding effective treatments and optimizing standards of care to improve the quality of life of people affected by neuromuscular disorders".

Achievements by ENMC

ENMC is dedicated to inform the neuromuscular community via publications in acknowledged scientific journals and via its website and social media on the progress being made during the workshops with regards to neuromuscular research and guidelines. ENMC is proud of its active patient participation giving patients a chance to discuss their needs with scientists.

ENMC has a longstanding and successful history in bringing consortia together. Today the ENMC is proud of: 

  •  more than 200 workshops on its résumé,
  •  results from more than 70% of the workshops published in the journal of Neuromuscular Disorders (Elsevier)
  •  an active network of over 2500 researchers, clinicians and patients with whom we are in regular contact,
  •  participants from over more than 65 countries creating international cross-talk and collaboration in trials.


Connecting People

The ENMC: A real step-forward in connecting people world-wide to make progress in the treatment and care of patients with neuromuscular disorders.