ENMC Workshops

ENMC has a unique concept of facilitating and organizing workshops for experts in the field of neuromuscular conditions. Every month a group of 20 - 25 researchers, clinicians, patients and industry representatives, come together in a meeting venue in the Netherlands to exchange state-of-the-art knowledge of and experiences with a neuromuscular condition. Amongst the main deliverables of these workshops are:

  • a full publication in the journal of Neuromuscular Disorder to disseminate workshop outcomes to other researchers and clinicians working in the field
  • a lay report on the ENMC website to inform patients and their families about what has been achieved at the workshop
  • networking and collaboration
  • define trial readiness and outcome measures
  • consensus about guidelines for diagnosis, therapy and care

We always take a picture of the workshop participants, see below some examples!