In the last decade, the number of clinical trials for neuromuscular disorders has steadily increased. For some diseases, the first treatments have already been made available to patients in the last five years. However, there is still much to do:
- The existing technologies require optimisation
- Clinical trial readiness needs further improvement
- Treatment readiness is a new important initiative to bring the new drugs to patients succesfully
- International consensus on the best practice care guidelines needs to be reached and implemented for all rare neuromuscular conditions.
This is also reflected in the increased number of applications submitted to ENMC. In 2015, we started the initiative of the ENMC Company Forum, which members are pharmaceutical, biotech and medical device companies with neuromuscular disorders as one of their areas of interest. The support of the Company Forum helps us respond to the increasing demand for ENMC workshops and thereby facilitates collaboration between key opinion leaders working in the field of neuromuscular disease worldwide.
In addition, members of the Company Forum are the main sponsors of the two ENMC programmes for the next generation of leaders in the neuromuscular field: the Early-Career Workshop Programme and the Mid-Career Mentoring Programme. The Early-Career Workshop Programme allows a minimum of two young scientists to be invited for the ENMC workshop of their choice. The Mid-Career Mentoring Programme facilitates 1-to-1 mentoring of people who already have a proven track record in neuromuscular science but who would like to broaden their leadership and communication skills. We are grateful to the many senior leaders who have offered their contribution as a mentor in this programme.
What does a membership entail?
As a member of the ENMC Company Forum, your company co-sponsors all ENMC workshops and the two programmes for the next generation of leaders (Early-Career Workshop and Mid-Career Mentoring Programme). Members of this forum will be associated with the mission and the values of the ENMC. The ENMC Company Forum adheres to the international guidelines regarding inducements and sponsorship.
If you have any questions regarding the Company Forum and/or your organisation wishes to consider membership of the ENMC Company Forum, please don’t hesitate to contact us at firstname.lastname@example.org or +31-35-5480481.
Current members of the ENMC Company Forum
The ENMC kindly acknowledges the generous support of the following Company Forum members: