INTRODUCTION to the ENMC workshop reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay language is used and disseminating the lay reports within the public domain. In addition, updates and quotes from the workshop are regularly posted on social media.

The lay report is published on our website to inform patients and their representatives and is disseminated via several patient organisation channels.

The scientific paper provides an overview of all the workshop presentations and discussions and is highly valued by our experts network.

 

Authorship ENMC workshop reports

The production of a lay- and a full report is obligatory and should not be included in the deliverables of a workshop.

  1. For each workshop a lay report is expected to be produced by the organisers and Early Career Researchers in close co-operation with the workshop participants. The lay report will be co-written or at least reviewed by the patient (and/or patient representative/advocate) to include their input. This lay statement should be provided to the ENMC office within two weeks following the workshop. It is encouraged that this lay report is translated by the workshop participants in several languages for local dissemination to patients and their families.
  2. Next to this, the full report on the workshop is expected to be submitted to Neuromuscular Disorders within 6 months following the workshop. In agreement with Neuromuscular Disorders, only the workshop organisers, a maximum of four, will be the named individual authors of the workshop report. There can also be a corporate (or collaborative) author. This could be the workshop participants, who are included in the author list on the first page with “on behalf of the ENMC XXXX Workshop Study Group” and listed individually at the end of the report.
    Early career researchers (a maximum of three) will be listed as part of the Study Group and may be nominated by the workshop organisers and ENMC to become named individual co-author of an ENMC full report if significant contributions are made to the organization of the workshop and its reports. This should be approved by the Editor-in-Chief of Neuromuscular Disorders, upon submission by the organisers, along with the workshop report, of a letter introducing the Early Career participants and explaining their respective contributions beyond workshop participation. The goal is to reinforce their motivation and involvement in the NMD field and to provide an opportunity to learn these organizational and scientific communication skills from the more experienced organisers.

Please refer to ENMC workshop report guidelines for more information.