INTRODUCTION to the ENMC workshop reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay language is used and disseminating the lay reports within the public domain. In addition, updates and quotes from the workshop are regularly posted on social media.

The lay report is published on our website to inform patients and their representatives and is disseminated via several patient organisation channels.

The scientific paper provides an overview of all the workshop presentations and discussions and is highly valued by our experts network.


Authorship NMD full reports

At the ENMC, we are trying to strengthen our support to younger and promising colleagues in the field, an objective which is shared and promoted by the World Muscle Society (WMS). Aside from the new Mid-Career Mentoring Programme recently launched (, we have reinforced our Early-Career Workshop Programme by, among others, requiring that the young scientists take a very active role in contributing to the organization of the ENMC workshop that they attend and the writing of the workshop lay and full report. The goal is to reinforce their motivation and involvement in the NMD field and to provide an opportunity to learn these organizational and scientific communication skills from the more experienced organisers.

The past policy for the publication of the ENMC workshop reports is that only the organizers (limited to four) are listed as authors, although all the contributing workshop participants are listed as a group at the end of the report and thereby can be retrieved through a PubMed search. In agreement with the Editor-in-Chief of Neuromuscular Disorders, Prof. Anders Oldfors, the four authors of the ENMC workshop report can now be extended by the names of those Early-Career researchers who are proactive and efficient contributors to both the workshop organization and the writing of the full report. Thus, not all the young scientists who participate in a workshop will necessarily be included as an additional co-author; this will be a motivational and fair reward to those young scientists whose contribution is significant.