ENMC has a unique concept of facilitating and organising workshops for experts in the field of neuromuscular conditions. Every month a group of 20 – 25 researchers, clinicians, patients and industry representatives come together in a meeting venue in the Netherlands to exchange state-of-the-art knowledge of, and experiences with, a neuromuscular condition. Output of the workshops are deliverables that, depending on the workshop topic, often focus on:

  • networking and collaboration in basic and applied research
  • define trial readiness and outcome measures
  • consensus about guidelines for diagnosis, therapy and care

The results of the workshops are published as:

  • a full report in the journal “Neuromuscular Disorders” to disseminate workshop outcomes to other researchers and clinicians working in the field
  • a lay report on the ENMC website to inform patients and their families about what has been achieved at the workshop

We always take a picture of the workshop participants, see below for some examples!