The 2nd report of the special ENMC workshop on the role of the neuromuscular patient in Shared-Decision-Making!

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Ambrosini et al. Orphanet Journal of Rare Diseases (2019) 14:126

 

ENMC bibliometric report published

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The CWTS bibliometric report on ENMC workshop derived publications is now available.

Publication on the impact of 25 years ENMC workshops

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Proud at our publication in Neuromuscular Disorders on “The impact of European Neuromuscular Centre (ENMC) workshops on the neuromuscular field; 25 years on …” by Alexandra Breukel et al.
Results from a bibliometric and quantitative analysis on workshop deliverables are shown in this publication.

Press release – ENMC publication about the role of patients in NMD research

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Expand the role of patients, the true experts, in neuromuscular disease research, is the conclusion of this international ENMC workshop !

JND Press release February 2019

Lochmüller et al, full paper PDF of full paper

New ENMC Research Director !

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Welcome to our new Research Director Dr Ana Ferreiro

Dr Ana Ferreiro, MD, PhD is the new ENMC Research Director as of January 1st 2019. We congratulate Ana on her new task within our organisation and look forward working with her.

Dr Ana Ferreiro is Research Director at the INSERM “Basic and Translational Myology” laboratory Unité de Biologie Fonctionnelle et Adaptative (BFA), Université Paris, France. She is also a consultant neurologist at one of the ERN centres: The Institut of Myology, Pitié-Salpêtrière Hospital in Paris.

We will be working on themes like patient participation in ENMC activities and encouragement of young scientists to join the ENMC network. Ana will accompany the ENMC office at several international NMD meetings and at ENMC workshops to meet with you in person.