New article about 30 years of ENMC in the journal of NMD!

In celebration of ENMC’s 30th anniversary we’d like to share with you this article about our impact so far!

Over the last 30 years ENMC has:

  • Organized 270 workshops
  • Established a network of over 4500 participants from more than 65 countries and from 5 continents.
  • Published 270 lay reports on our website and over 220 full papers in neuromuscular disorders with a high average mean normalised citation score of 1,24.

ENMC supports the next generation of leaders in the neuromuscular field. Read the full article about our journey and future goals here.


Submit your workshop application before March 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to before March 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 20 February 2023.

We are looking forward to your applications!

Before submitting, please check out our guidelines and application form here. 

Upcoming ENMC workshops 2023

We are proud to announce this year’s first confirmed workshops

  • 10-12 March 2023: 270 – Consensus for SMN2 genetic analysis in SMA patients?

    Organisers: Dr E. Bertini (Italy), Dr F.D. Tiziano (Italy), Dr E. Tizzano (Spain)

  • 16-18 Juni 2023: 272 –  Inclusion Body Myositis: 10 years of progress—revision of the “ENMC 2013 diagnostic criteria for IBM”

    Organisers: Prof. Conrad Weihl (US), Prof. M. de Visser (NL), Prof. J. Schmidt (Germany).

  • 20-22 Okt 2023: 271 –  Third ENMC meeting on SBMA: Towards a unifying effort to fight Kennedy’s Disease.

    Organisers: Dr M. Pennuto (Italy), Dr G. Sorarù (Italy), Dr L. Greensmith (UK), Dr P.F. Pradat (France)


Newest lay reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay language is used and disseminating the lay reports within the public domain.

We are proud to share two brand new lay reports from ENMC’s 268th and 269th workshop. You can read them by clicking the title below!

Lay report: 268th ENMC workshop (September 30th – October 2nd 2022)
Genetic diagnosis, clinical classification, outcome measures, and biomarkers in
Facioscapulohumeral Muscular Dystrophy (FSHD): relevance for clinical trials.

Lay report: 269th ENMC International Workshop (December 9th – December 11th 2022)                                             Clinical trials in DMD: Ten years on, what have we learned? How can we optimize future trial design?