Now published: The 2nd report of the 25th Anniversary ENMC workshop on the role of the neuromuscular patient in Shared-Decision-Making!
Ambrosini et al. Orphanet Journal of Rare Diseases (2019) 14:126
Author Archive for: alexandra
Entries by Alexandra Breukel
Publication on the impact of 25 years ENMC workshops
Proud at our publication in Neuromuscular Disorders on “The impact of European Neuromuscular Centre (ENMC) workshops on the neuromuscular field; 25 years on …” by Alexandra Breukel et al. Results from a bibliometric and quantitative analysis on workshop deliverables are shown in this publication.
Press release – ENMC publication about the role of patients in NMD research
Expand the role of patients, the true experts, in neuromuscular disease research, is the conclusion of this international ENMC workshop ! JND Press release February 2019 Lochmüller et al, full paper PDF of full paper
New ENMC Research Director !
Welcome to our new Research Director Dr Ana Ferreiro Dr Ana Ferreiro, MD, PhD is the new ENMC Research Director as of January 1st 2019. We congratulate Ana on her new task within our organisation and look forward working with her. Dr Ana Ferreiro is Research Director at the INSERM “Basic and Translational Myology” laboratory Unité […]
News
Now published: The 2nd report of the 25th Anniversary ENMC workshop on the role of the neuromuscular patient in Shared-Decision-Making!10 June 2019 - 19:33
Let’s celebrate, new ENMC website online!15 April 2019 - 15:55
ENMC bibliometric report published1 April 2019 - 12:30
Next workshop application deadline: 15 September 201918 March 2019 - 08:04
Publication on the impact of 25 years ENMC workshops12 March 2019 - 09:16