Entries by ENMC

Meet our new Operational Manager!

We are very pleased to introduce to you our new Operational Manager Ms Wilma Hinloopen! Ms. Hinloopen is a physiotherapist by training. For the last 30 years she has worked in different companies where she was active in the field operational- and project management. Wilma is organising workshops and is taking care of all financial […]

Mentoring Programme application: deadline July 1st!

We are proud to introduce the second application round of an exciting new initiative from ENMC aiming to support the next generation of leaders in the neuromuscular field. The Mid-career Mentoring Programme has been developed for people who wish to seek mentoring in order to become independent researchers and/or potential future leaders in the NMD […]

Next workshop application deadline: 1 September 2021

ENMC workshop applications can be submitted the whole year through, however we have scheduled only two review moments per year: one in the spring and one in the autumn. The next deadline for sending in applications for workshops is: 1 September 2021   The forms to be completed for a workshop application can be downloaded here. […]

ENMC White Paper

On Rare Disease Day 2020, the outcomes and consensus from the ENMC workshop on “The position of the neuromuscular patient in shared decision making” are now published in a WhitePaper. The workshop participants represented a wide range of stakeholders from 15 different countries: patients and parents, representatives from neuromuscular diseases organisations, clinicians, health care professionals, […]