Entries by Annelies Zittersteijn

Next workshop application deadline: 1 March 2021

ENMC workshop applications can be submitted the whole year through, however we have scheduled only two review moments per year: one in the spring and one in the autumn. The next deadline for sending in applications for workshops is: 1 March 2021   The forms to be completed for a workshop application can be downloaded here. […]

ENMC White Paper

On Rare Disease Day 2020, the outcomes and consensus from the ENMC workshop on “The position of the neuromuscular patient in shared decision making” are now published in a WhitePaper. The workshop participants represented a wide range of stakeholders from 15 different countries: patients and parents, representatives from neuromuscular diseases organisations, clinicians, health care professionals, […]