Entries by ENMC

ENMC will be present at the 26th Congress of the DGM!

The 26th Congress of the Medical and Scientific Advisory Board of the German Muscular Dystrophy Society will be held in Essen from 23 to 24 March 2023. This innovative, interdisciplinary and visionary congress will atract many participants! Ofcourse ENMC will be present as well. On March 24 we will host a booth at the Congress On […]

New article about 30 years of ENMC in the journal of NMD!

In celebration of ENMC’s 30th anniversary we’d like to share with you this article about our impact so far! Over the last 30 years ENMC has: Organized 270 workshops Established a network of over 4500 participants from more than 65 countries and from 5 continents. Published 270 lay reports on our website and over 220 […]

Submit your workshop application before March 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to enmc@enmc.org before March 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 20 February 2023. We are looking forward to your applications! Before submitting, please check out our guidelines and […]

Upcoming ENMC workshops 2023

We are proud to announce this year’s first confirmed workshops 10-12 March 2023: 270 – Consensus for SMN2 genetic analysis in SMA patients? Organisers: Dr E. Bertini (Italy), Dr F.D. Tiziano (Italy), Dr E. Tizzano (Spain) 16-18 Juni 2023: 272 –  Inclusion Body Myositis: 10 years of progress—revision of the “ENMC 2013 diagnostic criteria for […]

Newest lay reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay […]

Meet our new Operational Manager!

We are very pleased to introduce to you our new Operational Manager Ms Wilma Hinloopen! Ms. Hinloopen is a physiotherapist by training. For the last 30 years she has worked in different companies where she was active in the field operational- and project management. Wilma is organising workshops and is taking care of all financial […]

Mentoring Programme application: deadline July 1st!

We are proud to introduce the second application round of an exciting new initiative from ENMC aiming to support the next generation of leaders in the neuromuscular field. The Mid-career Mentoring Programme has been developed for people who wish to seek mentoring in order to become independent researchers and/or potential future leaders in the NMD […]

Next workshop application deadline: 1 September 2021

ENMC workshop applications can be submitted the whole year through, however we have scheduled only two review moments per year: one in the spring and one in the autumn. The next deadline for sending in applications for workshops is: 1 September 2021   The forms to be completed for a workshop application can be downloaded here. […]

ENMC White Paper

On Rare Disease Day 2020, the outcomes and consensus from the ENMC workshop on “The position of the neuromuscular patient in shared decision making” are now published in a WhitePaper. The workshop participants represented a wide range of stakeholders from 15 different countries: patients and parents, representatives from neuromuscular diseases organisations, clinicians, health care professionals, […]