Vacancy Managing Director ENMC

ENMC has per 1 October a vacancy for Managing Director (0,5-0,7 FTE).

If you are interested, click on this link for more information!

 

Alexandra Breukel leaving ENMC

After 10 years of working with much pleasure and dedication as ENMC Managing Director (MD), it is time for a new adventure! I will be leaving the ENMC as of 1 October 2023 and take time off to find a new chapter in my career.

Herewith I would like to thank you all for a wonderful time working together to improve lives of people affected by a neuromuscular condition. The ENMC is very close to my heart, but it is in the good hands of the ENMC board, Ana Ferreiro, Patricia van Dongen and Wilma Hinloopen, who will be your contact persons (enmc@enmc.org).

All the best!

Alexandra Breukel

 

 

18 days to go for submitting your workshop application before September 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to enmc@enmc.org before September 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 22 August 2023.

We are looking forward to your applications!

Before submitting, please check out our guidelines and application form here. 

Only 8 days to go to submit your mentee application! Deadline July 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your mentee application for the ENMC Mid-Mentoring Programme to enmc@enmc.org.

We are looking forward to your applications.

Please, check out the guidelines and application form here

ENMC will be present at the 26th Congress of the DGM!

The 26th Congress of the Medical and Scientific Advisory Board of the German
Muscular Dystrophy Society will be held in Essen from 23 to 24 March 2023. This innovative, interdisciplinary and visionary congress will atract many participants!

Ofcourse ENMC will be present as well.

On March 24 we will host a booth at the Congress

On March 25 (Patient-participation day) we will host a booth especially for patients.

 

 

 

 

New article about 30 years of ENMC in the journal of NMD!

In celebration of ENMC’s 30th anniversary we’d like to share with you this article about our impact so far!

Over the last 30 years ENMC has:

  • Organized 270 workshops
  • Established a network of over 4500 participants from more than 65 countries and from 5 continents.
  • Published 270 lay reports on our website and over 220 full papers in neuromuscular disorders with a high average mean normalised citation score of 1,24.

ENMC supports the next generation of leaders in the neuromuscular field. Read the full article about our journey and future goals here.

 

Submit your workshop application before March 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to enmc@enmc.org before March 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 20 February 2023.

We are looking forward to your applications!

Before submitting, please check out our guidelines and application form here. 

Upcoming ENMC workshops 2023

We are proud to announce this year’s first confirmed workshops

  • 10-12 March 2023: 270 – Consensus for SMN2 genetic analysis in SMA patients?

    Organisers: Dr E. Bertini (Italy), Dr F.D. Tiziano (Italy), Dr E. Tizzano (Spain)

  • 16-18 Juni 2023: 272 –  Inclusion Body Myositis: 10 years of progress—revision of the “ENMC 2013 diagnostic criteria for IBM”

    Organisers: Prof. Conrad Weihl (US), Prof. M. de Visser (NL), Prof. J. Schmidt (Germany).

  • 20-22 Okt 2023: 271 –  Third ENMC meeting on SBMA: Towards a unifying effort to fight Kennedy’s Disease.

    Organisers: Dr M. Pennuto (Italy), Dr G. Sorarù (Italy), Dr L. Greensmith (UK), Dr P.F. Pradat (France)

 

Newest lay reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay language is used and disseminating the lay reports within the public domain.

We are proud to share two brand new lay reports from ENMC’s 268th and 269th workshop. You can read them by clicking the title below!

Lay report: 268th ENMC workshop (September 30th – October 2nd 2022)
Genetic diagnosis, clinical classification, outcome measures, and biomarkers in
Facioscapulohumeral Muscular Dystrophy (FSHD): relevance for clinical trials.

Lay report: 269th ENMC International Workshop (December 9th – December 11th 2022)                                             Clinical trials in DMD: Ten years on, what have we learned? How can we optimize future trial design?